Sunday, April 27, 2008

We all have something

I was diagnosed with psoriatic arthritis about 5 years ago. Although I have lived with it for about 9 years. My psoriasis (the skin condition) flared up visually for the first time when my son was about 2 mths old. It wasn't a small thing either. Out of the blue my hands were like "hamburger meat", as my husband so nicely put it, and my face wasn't much better. I refused to leave the house. It was not long after that that I started having joint pain, stiffness and sore muscles. There are days when I can barely function, but, I try. Since psoriatic arthritis doesn't only effect your joints, but your muscles and internal organs, it confused many of my doctors as they were unfamiliar with the disease. I have had just about every test under the sun, in an attempt to diagnos my condition.
About a year and a half ago I had a muscle spasm that encompassed my entire mid-section and lasted about 30 minutes. When it was done I had to spend 2 days in bed, because I was so sore, and had pain that lasted in the area of my kidneys, for 3 months. That pain comes back on and off and last several weeks each time. I have been to all kinds of doctors to make sure that there is nothing wrong with my kidneys and have been told no. It is your arthritis attacking the muscles in that area. I have mixed feelings about that. The devil know vs the devil unknown sort of thing.
Many days I get up in the morning and the heel of my foot hurts almost too much to walk. Many days I feel like I got beat up. I get ear infections due to this an my nails are effected in big ways. I have lost numerous toe nails and my finger nails are extremely dry. Since appearance is very important to me, I have my nails done every 2 weeks. I have found after years of searching, products that I can use on my skin so that most people don't even know I have psoriasis. I have also managed to avoid medication, for I know once I start, I will never come off of them.
NO ONE knows I am sick unless I tell them. I like it that way.
Today is one of those days. I was on my feet all day yesterday outside, and today I am having a difficult time funtioning. EVERYTHING hurts.
The good news is, I still go out dancing with the girls, in 4 inch heels and go about my life. I refuse to give in. I can't yet. I just can't.
This is my life. I need to make it work.